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Anne PDF Print E-mail

OhioAnne

I was given many antibiotics throughout 2013, as I kept having urinary tract and bladder infections. My Urologist misdiagnosed me. He told me that I had interstitial cystitis, but I actually had a kidney stone. He never required me to have a CAT scan; he only did a cystoscopy. This didn't even show the kidney stone that I had because the kidney stone was beyond what the cystoscopy showed.

After I had the kidney stone removed, the Urologist prescribed Keflex. It was then that my my nightmare with C. diff began. The Flagyl did not clear up my C. diff infection, so then I was put on Vancomycin. I was actually put on Vancomycin twice since I kept testing positive for C. diff. I lost 20 pounds while I was sick; I was down to 95 pounds. I was begging the hospital to help me and keep me, but they kept sending me home.

Last Updated on Tuesday, 07 April 2015 19:21
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Janice & Thomas PDF Print E-mail

As told by Thomas

When my wife, Janice, had stomach bypass surgery, she was sent home from the hospital without having a bowel movement first. When I objected, the doctors said that she would be fine. The day after she got home, she had big, black stools. I called the doctors' office, and they again said that she would be fine. I continued to call for several days, and the doctors continued to say that she was okay. I told the doctors every day that my wife was experiencing severe blood loss, a C. diff infection, or both. They just continued to say that she was okay.

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Robin PDF Print E-mail

Washington

In January 2012, I was diagnosed with a large Uterine Fibroid Cyst at 49 years of age. I was subsequently Robin Todayscheduled for a cystectomy and vaginal hysterectomy in March 2012. Within just a few days of the procedure, I became ill with unknown symptoms and a high fever. I was diagnosed with a Surgical Site Infection and a Strep B Bladder Infection. My condition continued to worsen and I was diagnosed with Pseudomembranous Colitis in April 2012.

I was treated with Flagyl and Levoquin for the first event. I was then administered Amoxicillin for the bladder infection in May 2012, and was subsequently diagnosed with C. diff again in July 2012. I was treated with a two-week administration of oral, liquid Vancomycin. In January 2013, my condition worsened again after only a partial recovery. I have not been able to work gainfully since this illness began. On February 12, 2013 I was diagnosed with C. diff yet again. I was treated with Vancomycin Oral Liquid for 30 days. While I have remained C. diff free now since March 2013, there have been numerous complications. My life doesn't look anything like it did before I was exposed to this illness.

C. diff has ravaged my GI system; now, it essentially does not work. This creates all sorts of complications including lack of nutrition, hair loss, fatigue and so much more. Other systems feel like they are failing as well. This has put a great strain on my cardiac system, and my thinking is not as clear as it once was. I was weak and ill at my 50th birthday celebration in November 2012, as well as on my birthday vacation (which was nearly postponed due to C. diff).

Last Updated on Saturday, 27 December 2014 17:08
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Nora PDF Print E-mail

Pennsylvania

Now 39 years old, I suffered from C. diff for two long years before I was diagnosed. After seeing numerousnorab specialty doctors, it was my family doctor that finally ordered a stool sample. I was first diagnosed in September of 2011. I was initially prescribed Flagyl, but the infection came right back. Next, I was prescribed Vancomycin. Unfortunately, the infection came back again after just three weeks.

The doctors in my area knew nothing about C. diff. When symptoms arose for the third time, the specialist that I was seeing told me that there was no way the C. diff could be back. I had lost twenty pounds in three weeks; the doctor told me that I had an eating disorder and needed a mental health evaluation. At that point, I felt that I had done enough research on my own, and knew that the infection was back.

I found an infectious disease specialist in another state who prescribed a liquid compound of Vancomycin. That had seemed to work well for me. I thought that I was in the clear. Unfortunately, six weeks later, the C. diff came back. The infectious disease specialist I saw previously (my hero) referred me to another doctor (my angel) who performed a Fecal Microbiota Transplants (FMT). I was identified as a candidate.

Last Updated on Saturday, 27 December 2014 17:12
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Stephanie PDF Print E-mail

Alabama

I contracted C. diff during a C-section and hospital stay in my mid-thirties. I woke shaking, vomiting, covered in diarrhea, and crying for help. The doctors never tested me for C. diff, and instead sent me home with postpartum depression medication, insisting that I was simply unstable from giving birth. One week later, I wasn't even able to get up from my bed (which left my mother to care for my six kids). My OB/GYN was very disrespectful to me, saying that I was suffering from depression, that she didn't care, and that she didn't know what was going on with me. When I went to the hospital via ambulance, the doctors treating me there contacted her, and she reiterated to them that I was simply stressed.

After that encounter, my husband took me to the next town to a different hospital. There, they diagnosed me with a horrible, extreme case of C. diff, and admitted me to isolation for nine days. I never got better. I found out that my immune system's attack on the infection led to adrenal failure, hashimoto thyroid disease, and over 250 allergies, including Celiac disease. My specialist recently tested me to see if there is a reason--one autoimmune disease caused by the infection--that has caused all of this. We are praying for answers, as I am now on many different medications, can't eat, and haven't been well in eight months. I have been on steroids for inflammation, I have leaky gut syndrome, and have lost 104 pounds in seven months.

I still suffer, and also feel that I should get compensation for what I am going through. I have been to hospitals and specialists for more than eight months; I have very costly hospital bills to pay. It's not fair at all. My family works in shifts caring for me and my kids. This experience has taken an emotional toll on me as well. I was a very healthy mom before C. diff. I now have to use antibiotics frequently because I catch infections so often. At least every two months I have a new infection; I'm afraid of C. diff returning.

At this point, I don't know how to heal. I am totally dependent on the help of my family and my doctors. We have tried many treatments, dietary changes, and even bath and body products. Although, now that I'm practically allergic to water and air, it's difficult to find different foods and products to try.

I would love to help others learn about C. diff once I am well. It has wrecked my life. I would also love to hear other experiences like mine, and hear of people who have healed for good; I need hope.

Please help PLF continue to raise awareness of C. diff by donating today

 

Last Updated on Friday, 12 December 2014 15:44
 
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Disclaimer: The information on this website is not intended to replace the advice of a doctor. The Peggy Lillis Memorial Foundation disclaims any liability
for the decisions you make based on this information and ecnourages you to visit your doctor if you suspect you have Clostridium difficile.